The amazing journey of a brave, fun-loving, creative boy who is enduring and has overcome so much already: failure to thrive, feeding tube dependency, food allergies, silent reflux, pulmonary valvar stenosis, chiari malformation, syringomyelia, retroflexed odontoid, mild bilateral hearing loss, a blood coagulation disorder, and Noonan Syndrome.
Friday, January 7, 2011
Tube weaning - we start January 10th
We have our doctor's approval to do a full blown wean - meaning that we will be reducing his tube feeds by 10% daily for five days, then staying at 50% for 3-5 days and then reducing another 10% daily until we get to 0%. We hope to see an increase in oral intake during the 50% days. I will post more about our progress later. We've based our weaning plan on the Graz model used at the Children's Hospital in Graz, Austria.
Labels:
tube weaning
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