We found out on Thursday that Auggie is probably allergic to eggs. He had a skin prick test for 20 common allergens and only eggs turned out positive. The test is unreliable though and only shows if there is a topical skin reaction to certain foods and does not show positive if the gut is affected (which is most often the case with Auggie). We see his GI doctor this coming Thursday. Even though he's developing well, he does not seem to be growing so we're trying to pack the calories in as much as we can - we wake him up to give him his last bottle. His silent reflux also seems to have come back in conjunction with the exposure to eggs, so he is back on baby zantac. The next step is to have a RAST test done on his blood to check for allergies that way (can sometimes show more), but again it does not show if the gut is affected....Apparently allergies and reflux is a hidden epidemic that is difficult to treat because it's so hard to diagnose. Something we need to keep in mind.
Other than that, Auggie is stacking blocks, saying 2 word phrases - yesterday he pointed to a car going by and said "brum brum, dar dar" we think he is saying the Swedish word for there when he says "dar". He is sleeping much better now - almost sleeping through every night and we have moved him into his own room.
The amazing journey of a brave, fun-loving, creative boy who is enduring and has overcome so much already: failure to thrive, feeding tube dependency, food allergies, silent reflux, pulmonary valvar stenosis, chiari malformation, syringomyelia, retroflexed odontoid, mild bilateral hearing loss, a blood coagulation disorder, and Noonan Syndrome.
Showing posts with label zantac. Show all posts
Showing posts with label zantac. Show all posts
Sunday, April 24, 2011
Wednesday, December 29, 2010
Meds
We seem to have found a good combination of OTC and prescription medicine that keeps Auggie comfortable, produces daily bowel movements and reduces his stomach acid just enough to keep the pain down. He takes ranitidine (zantac) for his reflux, and cyproheptadine (periactin) to increase his appetite. We also give him 1 ml of milk of magnesia and it works wonders!!
Monday, November 15, 2010
New GI Doctor and feeding team
We had a 2nd opinion consultation with a GI doctor and now we have the go ahead to do a trial wean. What a difference a doctor can make!! We've also changed therapists and now have twice weekly in-home feeding therapy with a speech therapist. Being at home allows us to do so many more things - more props, baths, different foods...We'll probaly start the trial wean in 1 week and we'll pull his tube out during the day and cut his fluids by almost 50%. And our new doctor also took him off prevacid right away - turns out that prevacid can cause more vomiting....Now we're starting periactin and zantac as needed.
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