The amazing journey of a brave, fun-loving, creative boy who is enduring and has overcome so much already: failure to thrive, feeding tube dependency, food allergies, silent reflux, pulmonary valvar stenosis, chiari malformation, syringomyelia, retroflexed odontoid, mild bilateral hearing loss, a blood coagulation disorder, and Noonan Syndrome.
Friday, January 21, 2011
Tube Weaning: Day 12
Auggie continues to eat and eat and eat. He is taking more and more calories by eating his purees, but he is still not drinking very much. However, today he did start drinking neocate splash from his Mr. Juice Bear. He is getting a little bit of pedialyte tonight and then I think it's time to say goodbye to his tube!!! It has been an amazing journey....more news to come soon.
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