The amazing journey of a brave, fun-loving, creative boy who is enduring and has overcome so much already: failure to thrive, feeding tube dependency, food allergies, silent reflux, pulmonary valvar stenosis, chiari malformation, syringomyelia, retroflexed odontoid, mild bilateral hearing loss, a blood coagulation disorder, and Noonan Syndrome.
Tuesday, January 18, 2011
Tube Weaning: Day 9
Major breakthrough!!! Auggie devoured half an avocado this afternoon along with several tablespoons of peas, cauliflower and sweet potatoes. He was glum and distant when he woke up from his afternoon nap and when his speech therapist first came over, but once he started eating he quickly perked up. We are so proud of the little guy, now we just need to continue with the same volume of solids and get him to take more fluids. He took 70ml of his rice cereal drink today and several small sips of water and diluted white grape juice. We're cutting his calories again tonight - he'll get just 20% of his usual amount...we're hopeful that we'll have another good day tomorrow.
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