Showing posts with label Factor VII. Show all posts
Showing posts with label Factor VII. Show all posts

Friday, June 26, 2015

Blood coagulation results

Auggie's blood was checked again for various coagulation issues - all of them have improved!!  His platelets are stable at 138,000 - it's on the low end of normal, but stable.  His platelet function test came back normal as well as his CBC numbers. His Factor VII deficiency has improved from 60% to 85%. His PAI-1 improved from 3 to 4, which is still low but not in a dangerous way.  He does not even need to wear a medical ID bracelet and might not need medication before having dental surgery in October.

Friday, August 15, 2014

Hematology results are in

We just found out that Auggie's blood again tested positive for a rare condition - Factor XIII deficiency. It was the third positive test. In order to stabilize him for surgery he will be given Amicar and Novoseven (to pump up his low Factor VII)  The doctor is confident that Amicar will be effective as one of his blood samples was tested with it and it produced normal clotting.  It is not known why he has this blood anomaly and the doctors would like to perform some gene studies to figure out if it is a malfunctioning gene that is causing the clotting problems.  It's still a mystery to us why he has had all these health issues since he was born, but we feel like we are now getting closer to finding the answers.