The amazing journey of a brave, fun-loving, creative boy who is enduring and has overcome so much already: failure to thrive, feeding tube dependency, food allergies, silent reflux, pulmonary valvar stenosis, chiari malformation, syringomyelia, retroflexed odontoid, mild bilateral hearing loss, a blood coagulation disorder, and Noonan Syndrome.
Tuesday, January 11, 2011
Tube Weaning: Day 2
I expected a lot more today. His calories were reduced by another 12%, so he received 24% less today than his usual. I turned his food off at 10 AM. At 1 PM I offered him peas, butternut squash soup, snap pea crisps, rice cereal, juice drink, formula and he was not really interested but tolerated having his lips swiped a few times. At 3:30 his speech therapist came over again and we offered the same foods plus some apple chunks, blueberries, and carrot/apple mash-up and again no real interest although he did play around with his honey bear for a while as we watched his internal struggle: I want it but I'm afraid - he would pull it towards him, play with the straw, making smacking sounds, get the straw up to his face and then retreat. We hope that in a few days this will turn into the bottle he chooses to take some sips from. Tomorrow we reduce by 10%, for a total cumulative reduction of 34% - let's see what he does....
Labels:
tube weaning
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment