Saturday, January 29, 2011

Tube Weaning: Update

It's been a while since I've posted because we've hit status quo.  We reduced Auggie's calories to zero, took the tube out last Sunday and then he got sick.  He developed a high fever and we had no choice but to put the tube back in on Monday.  After 4 days of fever he broke out - Roseola!  So, now he's eating about 75% of what he was doing during his best days and we give him 140ml of formula and 150 of pedialyte at night.  He's drinking less and less very day it seems.  It's very frustrating that we are making no progress with his drinking skills/desire....his speech therapist is back on Monday after a 2 week break due to Auggie's illness, I hope she has some suggestions.  We are giving him avocadoes again as he needs the calories and he LOVES them.  We have not noticed the eczema again so it could have been from the chicken he tried a few days before he had avocado.  His weight is stable at 18 pounds (7% weight loss overall) and he has been pooping regularly which is great. 

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