Wednesday, March 30, 2011

Food allergies: Mango?

We think that Auggie had a reaction to mango.  I gave him a big chunk, peel and all, to munch on and lo and behold a few hours later he had hives on his wrists and eczema all over his body :(     I did find out that mango contains urushiol, the same sustance found in poison ivy!  Mango is out for now.  We will have Auggie tested for allergies in May - we'll probably do skin prick tests to rule out specific foods that we suspect such as dairy, soy, mango and others.

Even a daytrip gets complicated

We took the boys to the beach today and discovered that Liam is very picky about having his bottle at the right temperature.  We had ordered a travel bottle warmer but it did not arrive in time for this excursion. Our morning at the beach was cut short because we had to find a place to warm his bottle.  It was time to leave the beach anyway :)  All in all though it went smoothly and he ate all his other food without any problems.  We just need more practice eating and drinking away from home.....

Friday, March 18, 2011

Those dreaded food allergies

Auggie has been doing so well eating just about anything I dare give him. It's hard to resist giving him something when he sees it on my plate and just has to have it - sushi yesterday!!  I have to stop and remind myself that we are probably dealing with multiple food allergies that have yet to be confirmed.  Yesterday he started getting a little blotchy after drinking some vanilla rice drink, I didn't think much of it as he often gets blotchy after napping and rubbing his face.  So, I gave him some again today - by this evening he had swollen, red, itchy wrists, eczema on his back and red blotches on his face that extended from his mouth to his eyes.  He was also very cranky and did not want to eat.....I immediately scanned the ingredients on the rice drink and found that the only thing in the rice drink that his regular hemp drink does not have is "sunflower oil and/or safflower oil and/or canola oil".  He 's been eating canola oil for weeks so that's not it.  Could he be allergic to sunflower or safflower oil??? What else could it be??  We'll cut out the rice drink for now and see if his skin improves. 

Saturday, March 5, 2011

So long feeding tube!!!!

Yay!!!!!!  That's an understatement, HOOOOOORRRRAYYYYYYYYYYYYYYYY!!  The feeding tube is out. Auggie is now drinking and eating really well on his own.  The feeding tube was in for 9 months and it took 54 days to wean him completely.   Phew!!  It's an anti-climactic ending to a long nightmare because he has been making a little bit of progress every day.  We had great support from his GI doctor, a speech (feeding) therapist who came to our house 2-3 times per week and the North Bay Regional Center and Napa Infant Program who helped us pay for transportation costs to Stanford, a therapist to keep us sane, and a nurse to give us some respite. Thank you to everyone who was invloved in this amazing transformation.  We knew the little guy could do it - he is a true fighter!!!