The amazing journey of a brave, fun-loving, creative boy who is enduring and has overcome so much already: failure to thrive, feeding tube dependency, food allergies, silent reflux, pulmonary valvar stenosis, chiari malformation, syringomyelia, retroflexed odontoid, mild bilateral hearing loss, a blood coagulation disorder, and Noonan Syndrome.
Saturday, March 5, 2011
So long feeding tube!!!!
Yay!!!!!! That's an understatement, HOOOOOORRRRAYYYYYYYYYYYYYYYY!! The feeding tube is out. Auggie is now drinking and eating really well on his own. The feeding tube was in for 9 months and it took 54 days to wean him completely. Phew!! It's an anti-climactic ending to a long nightmare because he has been making a little bit of progress every day. We had great support from his GI doctor, a speech (feeding) therapist who came to our house 2-3 times per week and the North Bay Regional Center and Napa Infant Program who helped us pay for transportation costs to Stanford, a therapist to keep us sane, and a nurse to give us some respite. Thank you to everyone who was invloved in this amazing transformation. We knew the little guy could do it - he is a true fighter!!!
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CONGRATULATIONS! I could not be happier for you. So glad you had such great support--you deserve all the credit for making this happen. You worked so hard for him. Inspirational!
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