The amazing journey of a brave, fun-loving, creative boy who is enduring and has overcome so much already: failure to thrive, feeding tube dependency, food allergies, silent reflux, pulmonary valvar stenosis, chiari malformation, syringomyelia, retroflexed odontoid, mild bilateral hearing loss, a blood coagulation disorder, and Noonan Syndrome.
Wednesday, March 30, 2011
Even a daytrip gets complicated
We took the boys to the beach today and discovered that Liam is very picky about having his bottle at the right temperature. We had ordered a travel bottle warmer but it did not arrive in time for this excursion. Our morning at the beach was cut short because we had to find a place to warm his bottle. It was time to leave the beach anyway :) All in all though it went smoothly and he ate all his other food without any problems. We just need more practice eating and drinking away from home.....
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