The amazing journey of a brave, fun-loving, creative boy who is enduring and has overcome so much already: failure to thrive, feeding tube dependency, food allergies, silent reflux, pulmonary valvar stenosis, chiari malformation, syringomyelia, retroflexed odontoid, mild bilateral hearing loss, a blood coagulation disorder, and Noonan Syndrome.
Monday, November 22, 2010
Tube Free Day scheduled for tomorrow
I am busy preparing bottles, sippy cups, pureed food and anything else I can think of getting into Auggie's mouth tomorrow. We're turing his food off at 3 AM and taking his tube out in the morning and then not giving him anything all day. Hopefully he will at least take a few sips of water from a bottle - that would be a huge success!! The though is that he is never hungry and thereore has never really taken much orally. Wish us luck - will report the results here later...
Labels:
tube weaning
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