The amazing journey of a brave, fun-loving, creative boy who is enduring and has overcome so much already: failure to thrive, feeding tube dependency, food allergies, silent reflux, pulmonary valvar stenosis, chiari malformation, syringomyelia, retroflexed odontoid, mild bilateral hearing loss, a blood coagulation disorder, and Noonan Syndrome.
Monday, November 15, 2010
New GI Doctor and feeding team
We had a 2nd opinion consultation with a GI doctor and now we have the go ahead to do a trial wean. What a difference a doctor can make!! We've also changed therapists and now have twice weekly in-home feeding therapy with a speech therapist. Being at home allows us to do so many more things - more props, baths, different foods...We'll probaly start the trial wean in 1 week and we'll pull his tube out during the day and cut his fluids by almost 50%. And our new doctor also took him off prevacid right away - turns out that prevacid can cause more vomiting....Now we're starting periactin and zantac as needed.
Labels:
periactin,
prevacid,
tube weaning,
zantac
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