The amazing journey of a brave, fun-loving, creative boy who is enduring and has overcome so much already: failure to thrive, feeding tube dependency, food allergies, silent reflux, pulmonary valvar stenosis, chiari malformation, syringomyelia, retroflexed odontoid, mild bilateral hearing loss, a blood coagulation disorder, and Noonan Syndrome.
Sunday, August 22, 2010
A waiting game
We're waiting for test results from Auggie's EEG and next week he'll have an MRI. In the meantime I feel completely helpless until we have results back and know how to proceed. The tests might show that it's medically necessary for him to be tube fed right now, but I am so itching to start weaning him off that thing. I am trying to get him to nurse more (currently about 4-5 times daily for about 7 minutes) and I am pumping more and taking Reglan to increase milk supply. I am preparing myself to go 100% breastmilk in a few weeks - fingers crossed!!
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