The amazing journey of a brave, fun-loving, creative boy who is enduring and has overcome so much already: failure to thrive, feeding tube dependency, food allergies, silent reflux, pulmonary valvar stenosis, chiari malformation, syringomyelia, retroflexed odontoid, mild bilateral hearing loss, a blood coagulation disorder, and Noonan Syndrome.
Wednesday, August 18, 2010
Revised formula recipe once again
We've changed the calorie content of his formula again since the vomiting continues regardless of calories per ounce. We're now back at 24 calories per ounce at 30 ml/hr and still on continous feeds. I keep mentioning tube weaning as he is nursing more now and the doctors keep talking about G-tube (stomach tube). Once all the EEG and MRI test results are back we'll know better how to proceed. The good news is that he is nursing more - today he nursed 5-6 times - the most he's nursed in 2 months!! I am VERY pleased about that. Now I need to increase my milk supply - more pumping!!!
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