The amazing journey of a brave, fun-loving, creative boy who is enduring and has overcome so much already: failure to thrive, feeding tube dependency, food allergies, silent reflux, pulmonary valvar stenosis, chiari malformation, syringomyelia, retroflexed odontoid, mild bilateral hearing loss, a blood coagulation disorder, and Noonan Syndrome.
Friday, October 24, 2014
GI complications after surgery
Surgery is almost 7 weeks behind us now and we are dealing with a host of issues. Auggie has not really been eating for about a month now. He got constipated and started holding his urine. We have been in to see his gastroenterologist and we did a whole treatment for constipation including enemas, suppositories and miralax. We feel like he is better but the appetite has not returned. In 2 weeks he will have an endoscopy to look for obstructions, inflammation and anything else that could be wrong in his upper GI tract. They will also do a biopsy to check for celiac disease and the presence of eosinophils - the little buggers that show up in your intestine when there is a food allergy. We hope this is just a slow recovery after being constipated and nothing more serious. He is also having his follow-up MRI 1 month sooner than planned to make sure everything is okay there. We're also planning a renal ultrasound and a modified swallow study (x-ray movie of him swallowing)
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