The amazing journey of a brave, fun-loving, creative boy who is enduring and has overcome so much already: failure to thrive, feeding tube dependency, food allergies, silent reflux, pulmonary valvar stenosis, chiari malformation, syringomyelia, retroflexed odontoid, mild bilateral hearing loss, a blood coagulation disorder, and Noonan Syndrome.
Thursday, June 19, 2014
Posterior Fossa Decompression Surgery is set for August 8th
We had our third and final consultation with a neurosurgeon today and we were very impressed. It's hard deciding where to have surgery but we based our decision on what works best for our family time wise, reputation of the surgeon, overall gut feeling, and the fact that he already sees other doctors at that hospital. The pre-op appointment will be a few days before surgery and includes a consult with the anesthesiologist, a child life specialist and a quick MRI. We also have some blood draws to do before surgery.
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