The amazing journey of a brave, fun-loving, creative boy who is enduring and has overcome so much already: failure to thrive, feeding tube dependency, food allergies, silent reflux, pulmonary valvar stenosis, chiari malformation, syringomyelia, retroflexed odontoid, mild bilateral hearing loss, a blood coagulation disorder, and Noonan Syndrome.
Tuesday, April 1, 2014
GI - gastroenterologist update
This was the first GI appointment that did not result in any blood draw recommendations. He is on the charts for height and weight and BMI, although in the low 10th percentile. All good things considering where he's been. We're just going to keep doing what we're doing - he still drinks special formula from a bottle but the doctor says not to challenge him since he could easily get dehydrated. So, even though he is four now we will let him have his morning and evening bottles while he gets better at drinking from a straw cup. He is still on periactin (cyproheptadine) 1 mg three times a day about 1 hour before meals to stimulate his appetite. It works really great for him.
Labels:
BMI,
cyproheptadine,
GI,
periactin
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