The amazing journey of a brave, fun-loving, creative boy who is enduring and has overcome so much already: failure to thrive, feeding tube dependency, food allergies, silent reflux, pulmonary valvar stenosis, chiari malformation, syringomyelia, retroflexed odontoid, mild bilateral hearing loss, a blood coagulation disorder, and Noonan Syndrome.
Sunday, June 19, 2011
Preparing to fly to Europe
Traveling with children is complicated and stressful, but flying with a toddler who has food allergies opens up a whole new can of worms. I have to bring ALL his food and figure out a way to keep his beverages either hot or cold during our journey. I'm also going to ask his doctor for a TSA letter stating his medical condition so that I might be hassled less about the quantities of rice drink I have to bring on board! On the plus side we don't think that Auggie has a life-threatening allergy to anything which must be a lot more stressful when flying, but on the other hand, consuming something he does not tolerate could make him very sick and dangerously dehydrated. I'll post an update in a few weeks with all my latest "gear" and a sample of the TSA letter!
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