The amazing journey of a brave, fun-loving, creative boy who is enduring and has overcome so much already: failure to thrive, feeding tube dependency, food allergies, silent reflux, pulmonary valvar stenosis, chiari malformation, syringomyelia, retroflexed odontoid, mild bilateral hearing loss, a blood coagulation disorder, and Noonan Syndrome.
Saturday, February 26, 2011
How we pump calories into his food
Every calorie counts when your kid is not even on the growth charts for weight. In order to get the most bang for the buck we make his purees by mixing his veggies and fruits with full fat delicious coconut milk. His sweet potatoes are something ridiculous like 50 calories per ounce! We also use canola oil in his food and we add rice protein powder to just about everything he eats. We track every single bite and record it in a spreadsheet that gets sent to his nutritionst at Stanford. It's a full time job makng sure that he gets 15-16 grams of protein, 500mg of calcium and 100 calories per kilo every day!!!
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