The amazing journey of a brave, fun-loving, creative boy who is enduring and has overcome so much already: failure to thrive, feeding tube dependency, food allergies, silent reflux, pulmonary valvar stenosis, chiari malformation, syringomyelia, retroflexed odontoid, mild bilateral hearing loss, a blood coagulation disorder, and Noonan Syndrome.
Friday, December 3, 2010
Tube Weaning Trial Results
After 3 days of getting only 50% of his usual fluids and 25% of his usual calories, Auggie did take more by mouth on the 2nd and 3rd days, but it was negligible. He took a bottle of Swedish valling - kind of like smooth runny porridge. I had thickened it and cut a larger hole in a newborn nipple. He took about 15ml of this on his third day. He never really got cranky or showed us in other ways that he was hungry. Now we regroup and discuss this with our doctors and wait find out how we should proceed next. I have a feeling that this is going to be a long road....
Labels:
tube weaning
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