The amazing journey of a brave, fun-loving, creative boy who is enduring and has overcome so much already: failure to thrive, feeding tube dependency, food allergies, silent reflux, pulmonary valvar stenosis, chiari malformation, syringomyelia, retroflexed odontoid, mild bilateral hearing loss, a blood coagulation disorder, and Noonan Syndrome.
Monday, February 9, 2015
3 month Post-Op MRI shows good news!
Auggie recovered after his constipation and is now back on track with eating and drinking. We never did the endoscopy because he started eating again. He is still on miralax - about 1 tablespoon daily to prevent constipation. It seems to be working. The MRI in December showed that his syrinx has shrunk by about 30%. This is great news. The next MRI will be in July and we hope to see further improvement then.
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