The amazing journey of a brave, fun-loving, creative boy who is enduring and has overcome so much already: failure to thrive, feeding tube dependency, food allergies, silent reflux, pulmonary valvar stenosis, chiari malformation, syringomyelia, retroflexed odontoid, mild bilateral hearing loss, a blood coagulation disorder, and Noonan Syndrome.
Monday, September 19, 2011
Medical Update: Allergist diagnosed him with milk protein enterocolitis
After seeing an allergist at Stanford Auggie was diagnosed with milk protein enterocolitis. The diagnosis is based on my anecdotes and observations - no medical test available to diagnose it. So, we are staying off milk but have been experimenting with cheese. We will do a blood test for celiac disease in the coming weeks. We've introduced gluten and so far he seems to be tolerating it - it's hard to tell though because the quantities he's consuming are quite small. He has come down with Roseola again so we had a few days of minimal eating which was very depressing. We hope to get back on track soon as he is teeny tiny - he just hit 20 pounds before he got sick.
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