The amazing journey of a brave, fun-loving, creative boy who is enduring and has overcome so much already: failure to thrive, feeding tube dependency, food allergies, silent reflux, pulmonary valvar stenosis, chiari malformation, syringomyelia, retroflexed odontoid, mild bilateral hearing loss, a blood coagulation disorder, and Noonan Syndrome.
Wednesday, October 27, 2010
Neurologist Follow-up
Back from the neurologist and the news is good. He says Auggie looks good and we don't have to come back. Apparently Auggie's developmental delay happened at 3-4 months when he wasn't growing. He is now catching up evidenced by his motor skills developing - now sits unsupported. So, although he's delayed now he should eventually catch up. Great news!!
Tuesday, October 12, 2010
Procedure: echocardiogram
Auggie had a follow-up echocardiogram yesterday and it showed some improvement. His pulmonary stenosis is still mild but according to the cardiologist the valve seemed to open a little bit more than last time. If it doesn't get worse in the next 4 months the doctor will not have to do anything about it (i.e. surgery) and Auggie will outgrow the problem with time.
Sunday, October 10, 2010
Eating solids: an update
Auggie now anticipates his meals and seems to enjoy them. I make sure to feed him when his older brother eats so that he has some entertainment and someone to learn from. He sits in his high chair and I place the puree directly in his tray. When he sees the food he dips his fingers in it and brings them to his mouth - this is a major accomplishment.
Results: Urinalysis and bloodwork
The results from the urinalysis and eletroltye panel are back and there are a couple of disconcerting stats. The PH and the protein in the urine are slightly elevated - hopefully not indicative of kidney problems. We're redoing the urinalysis in a couple of weeks. The higher PH levels could be due to the antacid medication and the vomiting.
Sunday, October 3, 2010
Results: Abdominal Ultrasound
The results from the abdominal ultrasound came back normal. The search for answers goes on.
Friday, October 1, 2010
Results: Genetic chromosomal tabulation
This week we heard back from the geneticist and the great news is that the results are all normal - no missing chromosomes and no extra ones either!
Procedure: Abdominal Ultrasound
Auggie had an abdominal ultrasound today. It was painless, although he had to fast 4 hours prior to the procedure. The results of the ultrasound will be available in 2-3 days. The procedure was done because he had been vomiting more than usual and his doctor wanted to make sure that there was nothing more serious going on with his organs.
Subscribe to:
Posts (Atom)