Sunday, May 15, 2011

"He looks different, but he's cute"

We know that Auggie looks different and our very honest acquaintance was just saying what others only dare think.  We also know that he is a very smart boy and that his "condition" or "syndrome" or whatever it may be is probably not going to affect his intellectual capacity or his quality of life.  He has suffered some developmental delay while on the feeding tube, but we think he will catch up. At 15 months he is still not walking but he is a very fast crawler and is very agile and comfortable with his movements.  We have a follow-up with the cardiologist in July, the geneticist in August and the GI doctor in August as well. In the meantime it's a full time job trying to make sure that he consumes enough calories.  His weight has stalled but we hope that the recent addition of dairy to his diet will help.  He is weighed every day and every teaspoon of food he eats is recorded and tracked.  He still has feeding therapy mostly to help him drink more.  He still will not drink any large amounts on his own - we use Mr. Juice Bear for kefir and his "formula" is still delivered in a baby bottle.  His verbal skills are improving.  He has about 10 words, the most recent one being "hi" while waving wildly!!  He really is a cute boy with a fun personality.

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